Understanding the Well-Being of Family Caregiver for Elderly With Dementia: Findings From a Literature Study
Kata Kunci:
Dementia, Elderly, Family Caregiver, Well-BeingAbstrak
Being the caregiver for elderly with dementia is a challenging task. Studies reported that elderly with dementia experienced cognitive and behavioral disorders, along with the need for assistance and continuous supervision. These adverse conditions can make the caregivers having problems with their well-being. The aim of this article is to identify factors contributing to family caregivers’ well-being for elderly with dementia. A systematic literature review based on PRISMA guidelines was conducted. Three databases, PubMed, ScienceDirect, and Google Scholar were systematically searched using specific keywords and Boolean operators. There were 1.061 hits emerged during the initial search. Following screening for duplication, title and abstract review, and further review based on the relevance to the study purpose, 21 studies were included for synthesis. The studies reviewed were conducted in many countries with varied customs, beliefs, and cultures, hence, many caregivers’ well-being factors were found. In order to get a better understanding to the results, we used the Social Ecological Model and clustered these factors into three levels: intrapersonal level, interpersonal level, and community level. These findings may help professionals in determining targets and strategies to provide the more effective psychological interventions and important skills to support the family caregivers’ well-being.
Referensi
Adelman, R. D., Tmanova, L. L., Delgado, D., Dion, S., & Lachs, M. S. (2014). Caregiver burden: a clinical review. Jama, 311(10), 1052-1060.
Allen, A. P., Curran, E. A., Duggan, Á., Cryan, J. F., Chorcoráin, A. N., Dinan, T. G., ... & Clarke, G. (2017). A systematic review of the psychobiological burden of informal caregiving for patients with dementia: Focus on cognitive and biological markers of chronic stress. Neuroscience & Biobehavioral Reviews, 73, 123-164.
Altamirano, O., & de Mamani, A. W. (2021). Risk and resiliency factors related to dementia caregiver mental health. Family process, 60(3), 904-919.
Aravena, J. M., Albala, C., & Gitlin, L. N. (2018). Measuring change in perceived well‐being of family caregivers: Validation of the Spanish version of the Perceived Change Index (PCI‐S) in Chilean dementia caregivers. International journal of geriatric psychiatry, 33(1), e120-e130.
Badan Pusat Statistik. (2021). Statistik Indonesia. Badan Pusat Statistik.
Basu, I., Mukhopadhyay, S., & Maulik, N. (2020). Family Caregiving in Dementia: Caregivers' Mental Health and Nature of Caregiving. Antrocom: Online Journal of Anthropology, 16(2).
Braun, A., Trivedi, D. P., Dickinson, A., Hamilton, L., Goodman, C., Gage, H., … Manthorpe, J. 2018. Managing behavioural and psychological symptoms in community dwelling older people with dementia: 2. A systematic review of qualitative studies. Dementia, 1-21. doi:10.1177/1471301218762856
Brodaty, H., & Donkin, M. (2009). Family caregivers of people with dementia. Dialogues in clinical neuroscience, 11(2), 217-228.
Cheng, S. T., Au, A., Losada, A., Thompson, L. W., & Gallagher-Thompson, D. (2019). Psychological interventions for dementia caregivers: What we have achieved, what we have learned. Current psychiatry reports, 21, 1-12.
Clare, L., Wu, Y. T., Quinn, C., Jones, I. R., Victor, C. R., Nelis, S. M., ... & Matthews, F. E. (2019). A comprehensive model of factors associated with capability to “live well” for family caregivers of people living with mild-to-moderate dementia: findings from the IDEAL study. Alzheimer Disease & Associated Disorders, 33(1), 29-35.
Cooper, C., Katona, C., Orrell, M., & Livingston, G. (2008). Coping strategies, anxiety and depression in caregivers of people with Alzheimer's disease. International Journal of Geriatric Psychiatry: A journal of the psychiatry of late life and allied sciences, 23(9), 929-936.
de Amorim, F. A. D., Giorgion, M. D. C. P., & Forlenza, O. V. (2017). Social skills and well-being among family caregivers to patients with Alzheimer’s disease. Archives of Clinical Psychiatry (São Paulo), 44(6), 159-161.
Deci, E. L., & Ryan, R. M. (2008). Hedonia, eudaimonia, and well-being: An introduction. Journal of happiness studies, 9, 1-11.
Di Mattei, V. E., Prunas, A., Novella, L., Marcone, A., Cappa, S. F., & Sarno, L. (2008). The burden of distress in caregivers of elderly demented patients and its relationship with coping strategies. Neurological sciences, 29, 383-389.
Diener, E., & Ryan, K. (2009). Subjective well-being: A general overview. South African journal of psychology, 39(4), 391-406.
Eid, M., & Larsen, R. J. (Eds.). (2008). The science of subjective well-being. Guilford Press.
Farina, N., Page, T. E., Daley, S., Brown, A., Bowling, A., Basset, T., ... & Banerjee, S. (2017). Factors associated with the quality of life of family carers of people with dementia: A systematic review. Alzheimer's & Dementia, 13(5), 572-581.
Fauth, E., Hess, K., Piercy, K., Norton, M., Corcoran, C., Rabins, P., ... & Tschanz, J. (2012). Caregivers’ relationship closeness with the person with dementia predicts both positive and negative outcomes for caregivers’ physical health and psychological well-being. Aging & mental health, 16(6), 699-711.
Fauth, E. B., & Gibbons, A. (2014). Which behavioral and psychological symptoms of dementia are the most problematic? Variability by prevalence, intensity, distress ratings, and associations with caregiver depressive symptoms. International journal of geriatric psychiatry, 29(3), 263-271.
Fauth, E. B., Femia, E. E., & Zarit, S. H. (2016). Resistiveness to care during assistance with activities of daily living in non-institutionalized persons with dementia: associations with informal caregivers’ stress and well-being. Aging & mental health, 20(9), 888-898.
Felstead, C., Perkins, L., Stott, J., Hui, E. K., & Spector, A. (2023). A systematic literature review of group-based training interventions for informal carers: impact on the behavioural and psychological symptoms of dementia (BPSD). Aging & Mental Health, 27(7), 1246-1255.
Gallagher, D., Ni Mhaolain, A., Crosby, L., Ryan, D., Lacey, L., Coen, R. F., ... & Lawlor, B. A. (2011). Self-efficacy for managing dementia may protect against burden and depression in Alzheimer's caregivers. Aging & mental health, 15(6), 663-670.
Gao, W., Zhang, T., Wang, H., Wang, S., Liu, Y., & Pang, X. (2022). Supporting caregivers of people with dementia: a systematic review of guidelines. Health & Social Care in the Community, 30(2), e305-e324.
Gauthier S., Webster C., Servaes S., Morais J. A., & Rosa-Neto P. (2022). World Alzheimer Report 2022: Life after diagnosis: Navigating treatment, care and support. Alzheimer’s Disease International.
Gorostiaga, A., Etxeberria, I., Salaberria, K., & Kortabitarte, I. (2022). Primary and secondary caregivers of people with dementia (PwD): Differential patterns and implications for psychological support. In Healthcare (Vol. 10, No. 6, p. 1102). MDPI.
Gupta, A., Solanki, R. K., Koolwal, G. D., & Gehlot, S. (2015). Psychological well-being and burden in caregivers of patients with schizophrenia. International Journal of Public Health Research, 4(1), 70-76.
Hong, Q. N., Fàbregues, S., Bartlett, G., Boardman, F., Cargo, M., Dagenais, P., ... & Pluye, P. (2018). The Mixed Methods Appraisal Tool (MMAT) version 2018 for information professionals and researchers. Education for information, 34(4), 285-291.
Kaddour, L., & Kishita, N. (2020). Anxiety in informal dementia carers: A meta-analysis of prevalence. Journal of Geriatric Psychiatry and Neurology, 33(3), 161-172.
Kashdan, T. B., Biswas-Diener, R., & King, L. A. (2008). Reconsidering happiness: The costs of distinguishing between hedonics and eudaimonia. The journal of positive psychology, 3(4), 219-233.
Kaufman, A. V., Kosberg, J. I., Leeper, J. D., & Tang, M. (2010). Social support, caregiver burden, and life satisfaction in a sample of rural African American and White caregivers of older persons with dementia. Journal of Gerontological Social Work, 53(3), 251-269.
Kneebone, I. I., & Martin, P. R. (2003). Coping and caregivers of people with dementia. British journal of health psychology, 8(1), 1-17.
Kristjanson, L. J., & Aoun, S. (2004). Palliative care for families: remembering the hidden patients. The Canadian Journal of Psychiatry, 49(6), 359-365.
La Placa, V., McNaught, A., & Knight, A. (2013). Discourse on wellbeing in research and practice. International Journal of Wellbeing, 3(1).
Lee, S. J., Seo, H. J., Choo, I. H., Kim, S. M., Park, J. M., Yang, E. Y., & Choi, Y. M. (2022). Evaluating the Effectiveness of Community-Based Dementia Caregiver Intervention on Caregiving Burden, Depression, and Attitude Toward Dementia: A Quasi‐experimental Study. Clinical interventions in aging, 937-946.
Lethin, C., Renom-Guiteras, A., Zwakhalen, S., Soto-Martin, M., Saks, K., Zabalegui, A., ... & Karlsson, S. (2017). Psychological well-being over time among informal caregivers caring for persons with dementia living at home. Aging & mental health, 21(11), 1138-1146.
Liberati, A., Altman, D. G., Tetzlaff, J., Mulrow, C., Gøtzsche, P. C., Ioannidis, J. P., ... & Moher, D. (2009). The PRISMA statement for reporting systematic reviews and meta-analyses of studies that evaluate health care interventions: explanation and elaboration. Annals of internal medicine, 151(4), W-65.
Luthans, F. (2015). Psychological capital and beyond. Oxford University Press.
Messina, A., Lattanzi, M., Albanese, E., & Fiordelli, M. (2022). Caregivers of people with dementia and mental health during COVID-19: findings from a cross-sectional study. BMC geriatrics, 22(1), 56.
O’Connor, C. (2011). Caring for dementia carers: the role of general practitioners in Ireland. Irish journal of medical science, 180, 327-332.
Orgeta, V., Sterzo, E. L., & Orrell, M. (2013). Assessing mental well-being in family carers of people with dementia using the Warwick–Edinburgh Mental Well-Being Scale. International Psychogeriatrics, 25(9), 1443-1451.
Pasquini, S., Margaritini, A., Gambella, E., Di Rosa, M., Maranesi, E., Bevilacqua, R., ... & Pelliccioni, G. (2022). A psychosocial intervention for supporting informal caregivers of older people with alzheimer disease: Protocol for the Innfamiglia randomized controlled trial. JMIR research protocols, 11(11), e37496.
Pinquart, M., & Sörensen, S. (2007). Correlates of physical health of informal caregivers: a meta-analysis. The journals of Gerontology series B: Psychological sciences and social sciences, 62(2), P126-P137.
Quinn, C., Nelis, S. M., Martyr, A., Victor, C., Morris, R. G., Clare, L., & IDEAL Study Team. (2019). Influence of positive and negative dimensions of dementia caregiving on caregiver well-being and satisfaction with life: findings from the IDEAL study. The American Journal of Geriatric Psychiatry, 27(8), 838-848.
Raivio, M. M., Laakkonen, M. L., & Pitkälä, K. H. (2015). Psychological well-being of spousal caregivers of persons with Alzheimer's disease and associated factors. European Geriatric Medicine, 6(2), 128-133.
Rippon, I., Quinn, C., Martyr, A., Morris, R., Nelis, S. M., Jones, I. R., ... & Clare, L. (2020). The impact of relationship quality on life satisfaction and well-being in dementia caregiving dyads: Findings from the IDEAL study. Aging & mental health, 24(9), 1411-1420.
Ryan, R. M., & Deci, E. L. (2001). On happiness and human potentials: A review of research on hedonic and eudaimonic well-being. Annual review of psychology, 52(1), 141-166.
Ryff, C. D. (2013). Psychological well-being revisited: Advances in the science and practice of eudaimonia. Psychotherapy and psychosomatics, 83(1), 10-28.
Sánchez-Teruel, D., Robles-Bello, M. A., Sarhani-Robles, M., & Sarhani-Robles, A. (2022). Exploring resilience and well-being of family caregivers of people with dementia exposed to mandatory social isolation by COVID-19. Dementia, 21(2), 410-425.
Schulz, R., & Martire, L. M. (2004). Family caregiving of persons with dementia: prevalence, health effects, and support strategies. The American journal of geriatric psychiatry, 12(3), 240-249.
Schulz, R., & Sherwood, P. R. (2008). Physical and mental health effects of family caregiving. Journal of Social Work Education, 44(sup3), 105-113.
Schulz, R., Beach, S. R., Czaja, S. J., Martire, L. M., & Monin, J. K. (2020). Family caregiving for older adults. Annual review of psychology, 71(1), 635-659.
Shabrina, A., Purboningsih, E. R., & Widiastuti, T. R. (2020). Gambaran kesejahteraan subjektif pada perempuan dewasa yang merawat orang tua dengan demensia. Jurnal Psikologi Ulayat, 8(2). https://doi.org/10.24854/jpu149
Sheehan, O. C., Haley, W. E., Howard, V. J., Huang, J., Rhodes, J. D., & Roth, D. L. (2021). Stress, burden, and well-being in dementia and nondementia caregivers: Insights from the caregiving transitions study. The Gerontologist, 61(5), 670-679.
Snyder, C. M., Fauth, E., Wanzek, J., Piercy, K. W., Norton, M. C., Corcoran, C., ... & Tschanz, J. T. (2015). Dementia caregivers’ coping strategies and their relationship to health and well-being: the Cache County Study. Aging & mental health, 19(5), 390-399.
Välimäki, T. H., Martikainen, J. A., Hongisto, K., Väätäinen, S., Sintonen, H., & Koivisto, A. M. (2016). Impact of Alzheimer’s disease on the family caregiver’s long-term quality of life: results from an ALSOVA follow-up study. Quality of Life Research, 25, 687-697.
Vitaliano, P. P., Zhang, J., & Scanlan, J. M. (2003). Is caregiving hazardous to one's physical health? A meta-analysis. Psychological bulletin, 129(6), 946.
Wiegelmann, H., Speller, S., Verhaert, L. M., Schirra-Weirich, L., & Wolf-Ostermann, K. (2021). Psychosocial interventions to support the mental health of informal caregivers of persons living with dementia–a systematic literature review. BMC geriatrics, 21, 1-17.
Walter, E., & Pinquart, M. (2020). How effective are dementia caregiver interventions? An updated comprehensive meta-analysis. The Gerontologist, 60(8), e609-e619.
World Health Organization. (2017). Dementia: number of people affected to triple in next 30 years. Www.who.int. https://www.who.int/news/item/07-12-2017-dementia-number-of-people-affected-to-triple-in-next-30-years
Yeh, T. Y., Su, J. A., & Chang, C. C. (2022). Factors associated with the quality of life in family caregivers of people with dementia in Taiwan. Taiwanese Journal of Psychiatry, 36(3), 124-130.
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